Wednesday, October 12, 2011

Getting it together...

In the past couple weeks I guess you could say I've been in a rut of sorts.  I have a million things that I need to get done and just haven't "gotten around to it" aka - DENIAL!! Never a good thing.  So, today I'm climbing out of the hole and making the appointments that will get me back to feeling myself.  It's funny because if someone around me was dragging their feet like I am, I'd be the first one dragging them out to "get it together".  I'm sure from the lecture I've just received  my very loving sister....They have hit their limit with me!

So point taken....I'm getting it together!
Our trailer will be closing for the season in the next few weeks which is sad because I always feel so peaceful there.  For some reason fishing and campfires always relaxes me and clears my head.   So, hopefully by next year this time I will be getting around better and will be able to enjoy it more.
A few exciting things in the near future, we are traveling to Maine for Thanksgiving.  If you've never been, you really should go just once.  It's hard to believe it is actually part of the U.S.  Just beautiful! 

Here are a couple pictures from last year:
The second shot is Canada from Eastport ME.  It is the Eastern most city in the United States, and so beautiful.  And my favorite part is John's Grandmother's cooking...YUM!

Our team for the MS walk should be starting soon, which is exciting.  This year we will be more prepared for it and we are looking for a new team name.  Any ideas are welcome.  Anyone is welcome to come and walk even if you can't make a donation, just come spend the morning (oh and walk 6 miles) lol.  If you know my family it's more of a party than anything so it's a good time!

I would really like to hear from some of you with anything you might be struggling with, whether you just need to vent or someone to "listen" feel free to comment.  Any comments are welcome! Thanks for taking the time to read my little piece of the internet!

In closing my little bit of something today is a website that I go to from time to time for MS patients.  It's really informative. 

Sunday, September 25, 2011

Sunday 9/25/2011

This is my first blog post to this site.  At this point, I'm not really sure the direction this blog will go.  Day to day I guess it will be whatever comes to mind.

A little about me:  I''m a 36 year old mom to a 13 year old wonderful young man.  He makes me laugh on an every day basis.  Married to my best friend, I guess everyone says that, but in my case it is true.  Recently diagnosed with Multiple Sclerosis, which I guess was the "brain" child behind this blog.  The reality of the baggage I'm carrying at this point is overwhelming.   From day to day the emotions I'm dealing with go from anger, sadness, denial and acceptance.  I seem to be all over the map these days.

I've made a huge decision to treat my illness with a risky drug that is not well tested at this point.  The fear of that is enough to keep your anxiety on 10.  The shots just were not working for me.  As this blog goes on, I'm sure the story of my last few years will be told as well.  It has been quite a battle.  My story is not one of a kind, it seems to be similar to all stories I've seen with anyone suffering with an autoimmune disorder.  But it is unique to me and mine.

Another interesting side note:   I'm not at all an English major of a writer of any kind.  Be gentle on me with spelling or grammatical errors! Thanks!

So, I guess my little of something today is a wonderful site I found that I thought would be of interest...
A young boy who paints pictures for sale to raise money for his mom who is fighting MS.

Till next time....